The GHS Board of Directors is comprised of medical and business professionals and individuals with bleeding disorders, all of whom are committed to the global mission of GHS and to the development of bleeding disorder camps and education and advocacy programs in developing countries.

Lee Hall / send email
Lee Hall, Chairman and CEO of Global Health Society, Inc. and National Director of Programs and Patient Advocacy for MedfusionRx has more than 15 years of comprehensive experience working with nonprofit organizations and healthcare companies creating programs for the bleeding disorder community and other chronic conditions. Lee has focused his efforts towards youth and adolescents over the years. His understanding of both domestic and international healthcare, camps, programs and community needs have strategically placed him in a position to be one of the founders of Global Health Society, Inc.

Among his previous charitable work, Lee served as Co-Chair & Co-Founder for the National Hemophilia Foundation’s Youth and Adolescent Program (1994-1998) and Vice-President, President, and Interim Executive Director of Hemophilia of Alabama (1994-2000).

In 1994 Lee met with Surgeon General Jocelyn Elders, MD and out of that meeting he created a HIV/AIDS Peer Education Program for the Birmingham AIDS Outreach that still thrives today. Lee established the first Youth Camp for the National Multiple Sclerosis Society’s Alabama Chapter (1999).

Lee’s journey has also taken him backpacking throughout Europe (1999). Upon his return to the United Stated he settled in New York City where he worked as a non-profit consultant to inner city youth and health organizations, in addition to Carnegie Corporation of New York (2000-2004).

Over the last twenty years Lee’s camp experiences have taken him to both Youth and Family camps across the United States and around the world, including Camp “Hemotion” in Northern California (1996-present) and Camp “Hot-to-Clot” in Western Pennsylvania (2006-present).

By delivering medical support in Romania (2005) Lee witnessed first hand the hardship of life without proper medication and the need for camps and other specialized programs for persons with bleeding disorders. Because of this trip Global Health Society, Inc. was founded. Along side other GHS board and community members he has traveled to Romania and Mexico creating camps, specialized programs and delivering medical relief every year since 2005.

In 2008 Lee will continue to expand GHS’s work as they enter into a partnership with Hemophilia Federation of America (HFA) by creating the Teen Connection’s first Camp, “All one world . . . A Herd to be Heard.” While in Mexico GHS will also implement their first Medical and Educational Family Symposiums.

Bobby Wiseman / send email
Robert (Bobby) Wiseman, has been actively involved with national, local, and international non-profits organizations in the health care, HIV/AIDS, and faith-based arenas for the past twenty years. He has served as the Vice President of Programs for the Hemophilia Foundation of Northern California where he orchestrated a number of new, innovative programs which have been replicated in various locations. He has managed and organized various recreational residential programs for adolescents, programs and services for adults with chronic illness as well as developed educational programs for the African American faith community. Robert has worked with the Health Resources and Services Administration to implement a five-year demonstration project in the San Francisco Bay Area to illustrate the effectiveness of peer based and led HIV/AIDS service delivery as the Administrative and Grants Manager for the San Francisco Emergency Metropolitan Area. In this capacity he developed program policies and procedures for the administration of a $5 million dollar Federal contract, developed a series of groups and workshops, and designed a revenue generation program.

Robert served as the first Chair for the World Federation of Hemophilia’s International Youth Congress for a period of eight years. In this capacity, he coordinated an international effort of young adults with hemophilia to meet and discuss pertinent medical issues as well as provide a venue for safe geo-political discussions. He increased both programs’ revenue via effective and diversified fund development to internationally based organizations over the eight year period. After this endeavor, Robert began work with Health Wrights, Incorporated, which is a group of advocated dedicated to advancing the health, basic rights, social equality, and self-determination of disadvantaged persons and groups. This experience working with the Projimo Project alerted him to the devastatingly inadequate health conditions of children in Western Mexico. He continues to work with the founders of Health Wrights on various community focused projects. With the United Church of Christ (UCC) he serves as the Regional Educator for sexuality and faith in which he is a certified trainer and facilitator for adolescents and teenagers.

Robert has earned a Bachelors from the University of California, Davis in Applied Behavioral Sciences. He has completed various trainings related to non-profit management which have concentrated on fund and program development, sustainability and community assessment. His additional volunteer experience includes, co-chair of the National Hemophilia Foundation Youth and Adolescent Program for five years, Song of Superman — an HIV/AIDS educational video done in conjunction with the National Hemophilia Foundation and the Canadian Hemophilia Society, Chair and Director of the Hemophilia Foundation of Northern California’s residential summer camp program, previous council member of the San Francisco Ryan White Planning Council, and Senior Business Operations Manager for Refuge Ministries/Ark of Refuge, a nationally recognized social justice non-profit organization.

Zuiho Taniguchi / send email
Zuiho “Z” Taniguchi has been involved with the bleeding disorders community for over 16 years. He was diagnosed with moderate Von Willebrand’s IIB, and platelet dysfunction at birth.

Z is currently working for Herndon Pharmacy where he is responsible for identifying new patients, servicing the existing patients so their needs are adequately met, identifying new territories, and being a patient advocate. Herndon is a home health care service designed to meet the needs of individuals with bleeding disorders.

Having been involved with numerous organizations has allowed Zuiho to travel and understand the needs of the bleeding disorders community on a national and international level. While working with the World Hemophilia Federation, Zuiho was able to attend world meetings in Ireland, Holland and British Columbia.

His involvement began when he volunteered at Northern California’s Camp Hemotion. His camp experience includes Tennessee’s Camp Freedom, Oregon Hemophilia Camp, and Disabled Adventure Outfitter’s Teen Camp. He currently serves as the camp chair committee for Northern California.

Zuiho also sits on the Hemophilia Federation of America’s board of directors. He is the chair for the teen program, which has an annual meeting each year where youth from all across the country come to attend. These meetings give him a chance to work and help youths deal with issues such as peer pressure, safe sex, and other factors that might come with living with hemophilia. In 2005, he was awarded the Mentor of the Year by the Federation for his successful work and dedication with adolescents.

He is currently living in Hayward, California and training for his 3rd level yellow cord in Capoeira.

Betsy Kase / send email
Betsy Kase began working with the hemophilia community in 1995 as an Information Specialist at HANDI (The Hemophilia AIDS Network for the Dissemination of Information) at the National Hemophilia Foundation. While working for HANDI, Betsy was in integral part of the development and production of marketing materials including resource lists, network and organizational referrals and HANDI monthly and quarterly newsletters. She became a hemophilia/HIV educator working with patients, families, hemophilia treatment center professionals and others in the HIV/AIDS community. As an Information Specialist she was sometimes the very first person a family would contact when there was a new diagnosis of hemophilia or HIV. With her interest in alternative/complementary medicine she researched, compiled and marketed resources and referrals on this subject. These resources were the first available and helped to add complementary medicine options to the medical regimes of patients with bleeding disorders and/or HIV/AIDS. Part of Betsy’s responsibilities were to also connect people with bleeding disorders with support groups like WONN (the Women’s Outreach Network of The National Hemophilia Foundation), MANN (the Men’s Advocacy Network of the National Hemophilia Foundation), Youth and Adolescent Program and Hemophilia Camps. During her time at HANDI, Betsy met Lee Hall at that time the co-chairman of the Youth and Adolescent Program (now Chairman and CEO of GHS) and was drawn to his passion, dedication and enthusiasm to the many causes this community has to deal with.

In 1997, Betsy opened her own yoga studio — Yoga Haven — in Tuckahoe, New York. Over the past nine years, Yoga Haven has become one of the most successful yoga studios in Westchester. Yoga Haven provides instruction to more than 1500 students per month and was twice voted the “Best Yoga Studio in Westchester.” Yoga Haven employs 25 staff including 20 yoga teachers, 2 massage therapists and 2 acupuncturists.

Betsy along with the staff of Yoga Haven and the yoga community together focused their resources to raise funds for Parent’s Place and The Bereavement Center of Westchester. She also lead fundraising projects in support of victims of the tsunami and hurricane Katrina.

Betsy will use her experience developing marketing plans for HANDI and Yoga Haven to lead this area for GHS, Inc. Betsy currently resides in Scarsdale, New York with her husband David Rossett and their son Jonah.

Dr. Marion Koerper
Pediatric blood disorder specialist
Dr. Marion Koerper, a pediatric hematologist, is chief of the pediatric Hematology Clinic and director and founder of the Hemophilia Treatment Center at UCSF Medical Center. She has a special interest in blood safety for hemophilia patients and has served on the Blood Products Advisory Committee of the Federal Drug Administration. She is vice chair of the Medical and Scientific Council of the National Hemophilia Foundation and founder and medical director of the Northern California Hemophilia Summer Camp. As part of her research, she participates in clinical trials to test new hemophilia treatments. Koerper earned a bachelor’s degree in biology at Stanford University and a medical degree at the University of California, San Francisco. She completed a pediatric residency and pediatric hematology-oncology fellowship at UCSF. She is a UCSF clinical professor of pediatrics.

Ilene Levy
Ilene Levy is a skilled Certified Meeting Professional (CMP) with extensive experience working in non-profit associations. For the past 20 years she has worked at multiple organizations including: The American Lung Association, The Society of Nuclear Medicine, The National Hemophilia Foundation and Hadassah.

She currently serves as the Executive Director of the International Special Events Society (ISES) New York Metro Chapter, a non-profit membership organization for professionals in the Special Event Industry. She was hired in 2005 as their first Executive Director. Ilene has developed the first Policy and Procedures manual, oversees the operations of the chapter and has helped increase membership by over 30%.

In 1994, Ilene was hired as the first Meeting Manager at the National Hemophilia Foundation where she organized and managed their annual meeting. At the 1994 Annual Meeting she worked with Lee Hall and Bobby Wiseman to develop and implement the first Youth and Adolescent Program which is still in existence today. She has served as a counselor at Camp Hemotion in Northern California three times, where she experienced the impact that the Hemophilia Camps have in empowering children with blood disorders.

Ilene has served on the Board of Directors for the Meeting Professional International (MPI) Greater New York Chapter as a Board Member and Vice President of Finance and in 1999 received the Meeting Planner of the Year Award. She has also served on the Board of Directors of the New York Chapter of the Professional Convention Management Association (PCMA).

Ilene and her husband have independently traveled throughout Asia, Europe and Northern Africa. Ilene is a black belt in GoJu Karate and continues to train and instruct developing students. She also recently completed her first sporting competition ’Äì the Tappan Zee Bike Tour ’Äì raising funds for Multiple Sclerosis.

Ilene currently lives in Ardsley, NY with her husband Scott and her sons, Matthew and Joshua.

Scott Levy
Scott is a seasoned international business executive having spent the past 10 years overseeing all international media and marketing operations for the National Basketball Association. Scott was responsible for the development of content and the sales and distribution of NBA, WNBA, USAB and NBA Development League programming in all parts of the world outside the United States and Canada. Levy also oversaw the NBA’s international marketing partnership sales and activation, the creation and distribution of new media and wireless content including the launch of NBA.com/China, and the development of game and non-game programming for the NBA’s international broadcast partners. In addition, he managed the NBA’s global advertising partnerships, along with over 100 employees based in 12 countries worldwide.

Before joining the NBA, Scott and his wife traveled independently throughout Asia. Beginning in China and ending in New Zealand they spent six months learning and enjoying the cultures of more than 10 countries. Previously, Scott and his wife spent 11 months independently traveling through Europe and the Middle East.

Prior to his trip through Asia, Scott worked in global media for agencies including McCann Erickson Worldwide and Young and Rubicam. He was responsible for managing high-profile accounts such as Coca-Cola, Nike and Gillette and developing international media activation platforms for events including the Olympics and World Cup.

Scott has been involved in the bleeding disorder community primarily through his wife, Ilene, and GHS President, Lee Hall. Given GHS’s plans to hold camps internationally and develop programs to address the needs of the worldwide population, Scott saw the opportunity to get further involved by helping in the global expansion and implementation of the GHS mission.

Scott has competed in multiple sport competitions including the New York Marathon and the Westchester Olympic Triathlon raising funds for Fred’s Team and the Leukemia and Lymphoma Society.

Scott currently resides in Ardsley, N.Y., with wife Ilene and sons, Matthew and Joshua.

David Rossett
David Rossett became acquainted with the hemophilia and HIV/AIDS community through his wife, Betsy Kase over 13 years ago. At the time, she worked at the National Hemophilia Foundation. Since then he has stayed connected to the community through Lee Hall and Ilene Levy. Upon hearing about the international hemophilia camps he immediately wanted to be involved and provide whatever services he could. David is chartered life underwriter (CLU), chartered financial consultant (ChFC) and certified financial planner (CFP). For the last 18 years, he has helped others (businesses and individuals) reach their financial goals. His areas of specialty fall into two categories: basic financial planning (education and retirement planning), insurance planning (life and disability), estate planning, and business planning (corporate agreements and benefit programs).

David has been actively involved with many not-for-profit organizations. Most recently, he helped raise money and awareness to fight childhood obesity through an organization called Team for Kids (TFK). In 2006, TFK raised $2,800,000 to promote physical education programs primarily in the New York City public school system. This program partnered with the New York City Marathon which David has run two times. His love for running has most recently taken him to Arizona to run his third marathon. Currently, he is actively involved in the development of a new organization, Run with Purpose. It is a non-profit organization also devoted to raise money and awareness to promote children’s health through physical education programs.

David resides in Scarsdale, New York with his wife Betsy and his son Jonah.

Dawn Rotellini
Dawn Rotellini has established a track record for successfully launching and directing non-profit organizations serving the bleeding disorder community in the United States. Dawn founded and directed the Rocky Mountain Hemophilia and Bleeding Disorders Association in Montana and Wyoming. Dawn’s projects included creating a family camp, launching a website, writing a quarterly newsletter and implementing and managing several fundraising events throughout her tenure.

Dawn currently works for Bayer HealthCare Pharmaceuticals as a Hematology Account Executive. In her ongoing volunteer efforts, Dawn serves as Vice Chairman for the Hemophilia Center of Western Pennsylvania, is an active committee member for the Western Pennsylvania Chapter of NHF, and serves on the Planning Committee for the non-profit FamOhio organization.

In January 2003, Dawn went on to work for the American Diabetes Association in the role of director of fundraising for the Western Pennsylvania area, managing three annual Walk events, a cycling fundraising event (Tour de Cure), a golf tournament and many other fundraisers which raised approximately $500,000 annually. More recently, Dawn served as Executive Director of the Western Pennsylvania Chapter of the National Hemophilia Foundation where her projects included creating a School Nurse Education Program about bleeding disorders, two summer camps for children with bleeding disorders, an annual family camp, and several annual fundraising events including a Dance for the Cure, a Wine Tasting fundraiser and a golf tournament. During her tenure there, she grew the organization’s budget to four times what it had been when she was hired.

Prior to establishing herself in the field of non-profit management, Dawn worked for Hewlett-Packard in Southern California and Tokyo, Japan. Upon returning to the United States, Dawn earned her Bachelors of Science degree from Montana State University in Political Science.

As the daughter of a man with hemophilia, Dawn got her start working with the bleeding disorders community through a very personal way. In 1998, Dawn gave birth to a son with hemophilia while living in Montana. Upon the realization that there was no Hemophilia Treatment Center (HTC) within 10 hours of where she lived, no hematologist in the state that would treat her son and no support organization for her family, Dawn set out to establish a support organization for families with the same medical challenges. Dawn founded and directed the Rocky Mountain Hemophilia and Bleeding Disorders Association.

Dawn’s past volunteer efforts include serving two years as Secretary for the National Hemophilia Foundation’s Chapter Staff Organization, serving as a member of the National Hemophilia Foundation’s Chapter Organization Committee and serving on the Editorial Advisory Committee for the National Hemophilia Foundation’s publication Hemaware from 2002-2005. Dawn has won the National Hemophilia Foundation’s 2005 Outreach Program Award for “Girl Talk” a program to educate school nurses about von Willebrand Disease, and the National Hemophilia Foundation’s 2002 and 2005 Communications awards for newsletters she created for the Rocky Mountain and Western PA chapters.

Dawn currently lives in Allison Park, Pennsylvania with her daughter Gianna and son Gino.

Irene Vlaskamp
Irene has been working in the bleeding disorders community for more than a decade and has worked in multiple therapy environments including traveling physical therapy.

In 1999, Irene began working at the Mount Sinai Medical Center Hemophilia treatment center. Her work includes evaluation and treatment of children and adults with bleeding disorders as well as helping to plan and execute educational activities that help promote a healthy and active lifestyle among the center’s patients.

Irene serves as the region II representative to the National Hemophilia Foundation’s (NHF) physical therapy working group (PTWG). Her responsibilities include making sure that all PT’s in the region (New York, New Jersey and Puerto Rico) are collecting range of motion for a study being conducted by the Centers for Disease Control per protocol. In addition, she is responsible for planning the PT section of a yearly regional meeting. Irene has served as co-chair of the NHF PTWG as well as chair of the group. The PTWG plans one of the educational tracks for NHF’s annual meeting in addition to many other activities and projects. As part of Irene’s role as chair of the group, she sat on the medical and scientific advisory committee (MASAC) for NHF.

Two years ago Irene led a committee on the PTWG to start the first annual walk at NHF’s annual meeting to help promote exercise within the bleeding disorders community. Irene is one of eight physical therapists who took normal range of motion measurements in a nation wide study looking at “normal range of motion” in 2 to 69 year-old males and females. The study was sponsored by the Centers for Disease control with support from Hemophilia Treatment Centers around the country. This study will help us better understand normal range of motion and therefore, what happens in the joints of people with bleeding disorders.

In 2000, Irene became personally involved in the bleeding disorders community when she was diagnosed with type I von Willebrand Disease after years of unexplained bleeding. Irene’s story of going 20 plus years from the onset of symptoms to the time of diagnosis is unfortunately all too common. Irene has done health news segments on national TV networks as well as told her story on Capitol Hill in order help raise awareness about von Willebrand Disease.

Irene was born in Johannesburg, South Africa and has lived in the U.S. since 1981. She has run the Disney marathon five times and the New York Marathon once to help raise money for the Leukemia Society and the Fanconi Anemia Research Fund.

Irene graduated from Saint Louis University in 1994 with a BS in Physical Therapy. She currently resides in Philadelphia, PA with her husband Roger Cornwall and their twin boys Evan and Jackson. Roger Cornwall is an orthopedic surgeon and the two hope to one day use their knowledge and expertise to help people with musculoskeletal problems in underserved countries.

Susan C. Zappa RN CPN CPON
Susan Zappa became a Registered Nurse in 1983 and has been working at the Cook Children’s Hematology Oncology Clinic since 1984. She became the Hemophilia Nurse Coordinator in 1985. Additionally, Zappa became a Certified Pediatric Nurse in 1990, and a Certified Pediatric Oncology Nurse in 1995. Zappa currently serves on several boards including the Nurse’s Working Group for the National Hemophilia Foundation (Co-Chair) and the Texas Hemophilia Summer Camp (Chair of the Board of Directors.)

One of the most rewarding projects for Zappa is her work with the World Federation of Hemophilia’s Twinning Program. Her treatment center is ‘twinned’ with a center in Lima, Peru since 2004 and she is the primary leader of the team. This partnership is for support, education, mentorship, networking, whatever each twin cares to offer. The Fort Worth, Texas-Lima, Peru twin was awarded the 2006 Twin of the Year Award for their exceptional work, overcoming many challenges and completing and even exceeding many of their stated goals.

In 2006-2007, Zappa received a ZLB Behring Healthcare grant for a book written to assist medical personnel in the Emergency Department who care for patients with von Willebrand disease. This book was then distributed to all the Hemophilia Treatment Centers in the US and Canada. In 2003, Zappa received two grants for different projects. One was the National Hemophilia Foundation’s Nursing Excellence Fellowship for an educational book for middle school age children teaching them about von Willebrand disease. The other was the Bayer Hemophilia Caregiver Award for an outreach seminar for medical personnel in a city on the Texas-Mexico border.

Zappa has received numerous awards over the last fifteen years including the Dallas-Fort Worth Great One Hundred Nurses Award, the Cook Children’s Nursing Excellence Award in Nursing Education/Research and the Cook Children’s Nursing Excellence Award in Nursing Research.

Zappa has had many articles on hemophilia and bleeding disorders published. She presents at regional, national and international meetings. Zappa sits on several nurse advisory boards, national committees and speaker bureaus. She is a member of the National Hemophilia Foundation, the Hemophilia and Thrombosis Research Society and the World Federation of Hemophilia.

Zappa currently lives in Fort Worth, Texas with her husband of 34 years, Leo and their four cats.